4th Mapping

I've now been given the go-ahead to wear both implants and I'm ready for the Bilateral Life!! Michelle, my dear audiologist, did a minor bit of tweaking of my C1, my old implant, and tested each electrode of the new Harmony. There was one frequency that would not become uncomfortably loud, even when programmed to do so. So Michelle just left it equal with the other pitches rather than de-activate this wayward one.

I already love the fullness of sound with two auditory nerves receiving sound, albeit not quite in sync as yet. The Harmony is a sharper, crisper sound than my C1. The "older" sound is fuller, more robust. So together, they are a nice mix of differences. I truly believe with time they will miraculously blend together, old and new technology becoming one in my noggin'.

Our Creator has engineered our brains for extraordinary achievement. My right ear was basically DEAD to sound for 8 years with no benefit from even the best state-of-the-art hearing aid, and it was made ALIVE in only minutes with the new Harmony. I still cannot believe it. Praise be to our Awesome God!

BPPV

BPPV (Benign Paroxysmal Positional Vertigo) can be awful. If you've ever had it, you know what I mean. There will be no pictures with this post as the scene would be too unpleasant, not to mention embarrassing. Gerry was on the phone with my surgeon after 11:30 pm on Friday evening, seeking advice concerning my vertigo and throwing up. Dr. Danner was so wonderful, staying on the line for over 20 minutes as he told Gerry how to do the Epley maneuver and calling in some prescriptions for nausea and vertigo.

It is now Sunday evening and I'm managing to type this brief account, so things are looking up.

Solutions

It seems that the problem-solvers at Advanced Bionics are always working to better our lives. The new smaller T-mic is just the ticket for me, I think. Time will tell if the reduced size will eliminate my sore spot, but it already feels more secure and less tender after 10 hours.

3rd Mapping

It's hard to believe that it's been only 15 days since activation of my second ear. There was a time, many years ago now, when the suggestion of entering the sound booth to test my ears would immediately produce a feeling of dread. Today I welcomed the suggestion of getting a baseline score on the new Harmony. Twenty sentences in quiet - - - 97% accuracy!

Healing

After another trip to the optician, I think the soreness from my glasses is now solved. The tenderness on the top of my ear is still an issue, but a thinner moleskin on the T-mic is helping. Such a minor thing, yet we little-eared people need to pass on our trials and tips. If only some other parts of my anatomy were also little!

2nd Mapping for 2nd Ear

I expected that I would see my audiologist this morning for a second time for my second mapping on my second implant. Not so, because she called in sick. (Do you think I’m enjoying the “s” sound?) Michelle, my audi for today, has a different approach to initial mappings than Lisa and changed all 3 programs to 50/50 (50% T-mic, 50% processor mic) with each one differing in volume only.





















She raised the thresholds on each pitch and encouraged me to wear the new Harmony by itself in order to mature that “baby” auditory nerve. Apparently, the emerging research is indicating that progress is much faster with the second ear if the primary, older one is set aside for a time. It is now predicted that the sound will be comparable after 4-6 weeks of solo work but would likely take 2 years if worn together. Wow! That's worth setting the wonderful surround sound aside for now.

Can You Hear Me Now?

No one would ever describe our church, St. Andrew's Chapel, as contemporary in style. We don't have a plexiglass pulpit, large screen monitor, or "worship team" of electric guitars on stage to lead us in praise songs. There would never be a skit or mini-drama as part of the Sunday service, and no applauding after a soloist or choral piece. St. Andrew's is classical Reformation faith in practice, complete with formal robes, candles, and a string quartet. Gerry and I love the quiet reverence and emphasis on worship.

Why am I sharing all this? Because when my beloved pastor, Dr. R.C. Sproul, mounted the pulpit to begin his Good Friday sermon, he did something very uncharacteristic and the congregation responded in a manner I will never forget. Watching this short video clip always bring a tear to my eye and a catch in my throat:

More serendipity

My serendipity today was an unbelievable sight rather that an unexpected sound. On a whim and for a change, Gerry drove home from "our" Wendy's by turning down a dirt lane to see if it would be a shortcut. We've lived here nearly 6 years and never checked this out. Not more than a few blocks from our house, sitting on an old wooden arbor, was a baby barred owl! Now there's a face that only a mother could love. In all our years, neither Gerry nor I have ever seen a wild baby owl up close and personal.

Ah . . . serendipity.

Dry and Store

This is the dehumidifier that has kept my C1 processor dry, clean, and safe from a playful dog and many rambunctious cats over the years. Gerry once commented that the unit has quite a hum for 10 minutes or so when it's sanitizing and a soft motor noise all night. Of course, I only turn it on when my "ear" is inside, so how would I know? Well, by getting a second ear, that's how. I put my C1 away this afternoon so that I would have a long stretch of time working my "new" ear and viola - - - a motor noise. "What's that sound, hon?"

Serendipity

I've always liked the word serendipity; it's a fun word, sorta like zippity-do-dah. When you are thrilled by the unexpected, when you discover or observe something by "chance" that is exceedingly special - that's serendipity!

I was thinking about dates today and about a plaque I'd seen in a catalog that read: "Life is not measured by the number of breaths we take, but by the moments that take our breath away." (The same catalog had another that said, "Sometimes I wonder, why is that Frisbee getting bigger? . . . and then it hits me", but that one didn't have the same effect somehow.) I like the fact that my:

• 1st CI surgery = Sept. 19 - the day before my mom's 74th birthday


• 2nd CI surgery= Feb. 19


• 2nd activation = Mar. 17 - the day before my brother's 57th birthday
  

It had not occurred to me before my activation day that I would be "turned on" on the Monday before Easter and that this would mean that I would be engulfed in the robust choral music of Holy Week right out of the gate. Easter is so early this year, and because of leap year, it's one day shy of being as early as it could possibly be in a three-century period, Gerry says. (I'm married to a math tinkerer)

Tonight the choir did a marvelous arrangement of the spiritual, "Were You There . . ." and I could hear even the softest ooo's and mmm's. I never dreamed that my new Harmony processor and my trusted Clarion CI working together would give me this kind of music experience on Day #5!! This Easter is indeed about resurrection, even the resurrection of my dead ear.

Ah . . . serendipity!

Concert in the Parking Lot

Our church parking lot is surrounded by tall, deciduous trees and bordered by a retention pond on one side. Did you know that from 6:00 - 7:00 pm scores of birds give a free concert? You don't need a ticket, just a car with the windows rolled down and TWO ears that work!

The birds start "tuning up" about 6:05 and by 6:20 they are singing their little avian hearts out. I couldn't actually see the musicians among all the lush foliage, but their lyrical serenade floated in from both sides of the car and carried me away to glory!

What I couldn't fathom tonight was why the other early arrivals for our Good Friday service were either napping in their cars or reading the evening paper, seemingly oblivious to the Carnegie Hall performance that was all around them!!

Maundy Thursday

Last night, I wrote across the cover of my church bulletin: "My first bilateral church service". While the string quartet played and people meandered in for our Maundy Thursday service, Pastor Parsons (yes, that's really his last name!) came over to where I was seated along the center aisle, knelt down, and asked, "How does it sound?" All I managed to do in response was to get all misty-eyed and point to my note on the bulletin. He grinned from ear to ear.

As you probably already now, Maundy Thursday, also called Holy Thursday, is a service to commemorate Jesus' last supper and the institution of the sacrament of The Lord's Supper. Maundy comes from the Latin, meaning commandment (Come to think of it, I guess that explains the origin of the English word mandate.)

It was truly a Holy experience for me - - - I had no idea that our choir was that good. Who knew that they use such dramatic crescendos and decrescendos for emphasis, that their big sound fills the whole sanctuary!

Temporary Downside

My tiny ears often complain of too much baggage. My eye doctor straightened the temples of my glasses so it would grab the side of my noggin' above the power slim battery, but my ear is still not happy! Maybe my skin will adapt with a bit more time?

Day # 3: The Promised Land

I cried today - - - twice! First, while sitting in the car at the mailbox, listening to the CD, A Thousand Voices. Track 7 is a beautiful organ arrangement of the American traditional classic, "The Promised Land". I heard the melody line all the way through and it was gloriously filling my whole head! How apropos that the first instrumental piece to flood me with wonder was so named.
" I am bound for the Promised Land "

I teared up again this evening at the mall. I had gone with Gerry to choir practice at church, only to discover that there was no choir practice. We had missed hearing of this schedule change due to Easter week. With unexpected time on our hands, I suggested we case out the nearby mall for music boxes, wind chimes, or any musical instruments before heading home. We located a piano store on the directory and headed for the second floor.

Fortunately, we had the store to ourselves and spoke to the proprietor about wanting to hear a "real" piano played by an expert. He directed us to one of his computerized player piano models, chose a CD, and hit the play button on his remote. This poor, unsuspecting salesman had no idea that I had grown up listening to and loving the piano duo of Ferrante and Teicher and that track 1, the theme from "Exodus", would cause both of his potential customers to dissolve into tears! Oh, my . . . the fidelity, the memories, the stereo . . . there are no words. Can you believe the irony - Exodus. And the next piece was another favorite, Born Free!

Surround Sound

I am thrilled beyond words and completely exhausted from my first day of surround sound!! God blessed me above and beyond what I could ask or think. To understand speech right out of the gate was miraculous to me, albeit a bit strange-sounding and demanding that I look at the person. My activation day eight years ago with my first CI also gave me speech understanding, but it was a robotic noise that did not sound human. Today it was "people talk" right from the get-go, and there was a difference in the sound of each person in the room: Gerry, Dad, Mom, Lisa (my audiologist), Barbara (an audi in training), and me.

I now can understand why those who go bilateral find it hard to go with the newer implant only (I've been advised to do so as much as possible in order to awaken and train those dormant neurons of mine that have been inactive for decades). The stereo sound is truly incredible with 2 cochlear implants!!! It's kinda like taking a deep breath and experiencing an instantaneous unplugging of all your blocked sinus passages and the whole world comes alive with full sound. When I have them both on, everything is louder and it seems like 2 voices speaking at the same time, the new ear receiving a slightly higher pitched version of the person speaking. I guess my brain is processing it all but hasn't learned to blend yet, bilateral but not binaural.

It's so hard to answer the question of what the Harmony 120 sounds like when it's first turned on, but my best attempt is to say that people are down in a deep galvanized well, giving voices a distant, clank-y quality. Gerry, whose voice is often described as a rich, robust "radio" baritone, is sounding a tad higher pitched than "normal" with a tinny, buzzy follow-up. As I type this tonight, sound is already changing and improving. Experience tells me that it will get better and better. Oh, the wonder of technology!

Surprises on Day # 1:

• I preferred 120 over HiRes. The audi says that's probably because of my music background.
• The kit comes with more "standard" equipment than my Clarion kit years ago, such as a charger car adapter, travel case with built-in dri aid, patch cord, and spare T-mic. Thank you, AB.
• When doing the initial mapping, there was no need to determine threshold for each frequency, only the upper volume comfort levels, and no need to sweep each pitch to match the loudness.
• Since I have always done so well with high frequency sounds, I didn't expect that things that are high-pitched would have additional sounds. For example, walking on dried leaves, the start-up sounds of my computer, and the water boiling in my kettle all have more definition and "extra" sounds that were not there yesterday.

The differences for me in C1 and Harmony on Day # 1:

• Lighter weight on the ear
• Smaller battery (since I ordered the slims for my tiny ear)
• Ability to distinguish between voices
• Hearing half-tones on a piano keyboard
• Second map is scheduled for a week later, rather than the next day
• Better hearing of voices in a noisy restaurant

Activities on Day # 1:

• Visit with my optician to straighten the temples on my eyeglasses to accommodate the new processor
• Lunch at an Italian restaurant - crunch of bread was so much louder
• Continued with our current book-on-tape in the car en route from Mom and Dad's to home - fine with both, but not enough speech understanding with the new one alone (sound too distant and tunnel-y and too much road noise)
• Heard beeps from the cash register while using the restroom at a Circle K mini-mart. My goodness - - - and I was at the other end of the store!
• Experimented with a piano keyboard - could hear every note and a lot of the vibrato and harmonics that "trails" each note
• Listened to a bit of TV - - - great to realize that I understood without reading the Closed Captioning if I saw their faces and if they spoke at a normal speed.

Minor adjustments to make in daily living already:

• switched batteries for C1 from right side pocket to left to accommodate storing new battery pouch on right
• No need to always walk on Gerry's right side
• Less need to worry with seating in restaurants because no longer have a deaf side. Yippee!!

I am overwhelmed. An early Easter for me, the resurrection of my right ear.

Clean as a Whistle

My incision after only 2 weeks. Wow, CI surgery these days is really minimally invasive. Today was my post-op appointment. Everything looks good, both inside and out, says my surgeon. Only 12 days until activation!

Phantom Music

It's been very quiet this time. I expected a repeat performance from my Jamaican steel band or at least the man who plays the wood block or castanets! I had sooooo much company last time: a radio man chatting about something I couldn't quite understand, heavy rain on the roof, the approach and departure of a passing train every time I turned over in bed. Where is everybody?


The night's are so still . . . it's kind of eerie. Shouldn't my newly implanted ear be searching for sound and inventing its own when none is found? My left ear sure did 8 years ago! Hello?

A Week Later

Ah . . . I'm finally feeling drug-free and sensing the approach of "normal". Yippee!! It takes me such a long time to get over medications, even over-the-counter cold medicines wipe me out. It's been a week of slight improvement each day. Some dizziness and queasy stomach when not looking straight ahead has kept me inactive, unable to focus on the computer screen, and fairly bored. But I'm so grateful for no surgery complications and no fullblown vertigo. I am blessed indeed!

Maybe it's my faulty longterm memory, but I think my head is healing faster this time. I'm already sleeping without a pile of pillows and the incision is clean with no visible redness or stitches (I guess they are internal somehow; the surface did have some clear glue that stuck to the gauze, which was a bit tricky to remove when the pressure cup came off). The taste disturbance on the right side of my mouth seems to be lessening some. Almost everything tasted like cardboard on one side last week but slightly more flavorful this week. Having fresh oranges from our own citrus trees has been such a treat this time, definitely a Florida perk. Mom fixed me some proverbial chicken soup and delivered it the day after we got home from Tampa, another great plus for living in central Florida this time around. All in all, I am feeling quite humbled by the love and care of Almighty God and the prayers and kindnesses of family and friends.

The Second Time Around

It is now 4 days after my surgery and I'm ready to talk about it . . . a little bit. I can't help but compare this surgery with my first one nearly 8 years ago. The differences seem to outnumber the similarities. Some of these differences may be a product of time between surgeries (e.g., improved surgical procedures, smaller implant) or of location (e.g., different state, different hospital, different surgeon). Nonetheless, this time

• no shaved hair
• shorter time in surgery
• longer wait in pre-op (4 hours!) - even had to run a pregnancy test, hospital policy if "skipped" months. I'm going through menopause, for heaven's sake!
• pneumococcal vaccine before surgery
• incision behind and at the base of the right ear
• longer time in hospital recovery room
• velcroed headband with no surgical tape on my face
• less tinnitus
• overnight hospital stay due to nausea, in spite of anti-nausea patch positioned behind the other ear
• some bruising on the right side of my neck
• days of drymouth
• some hoarseness but no sore throat

Bilateral postponed

My surgery has been delayed until Feb. 19, 2008. This is actually a blessing as we are finally in the midst of moving, after spending 14 months remodeling an older home just a few blocks from where we were living. We've been bringing over each piece of furniture we've decided to keep by loading it on a sturdy yellow wagon. I think the neighbors are enjoying the steady processional.

The essentials are now in the "new" house. Our Christmas present to each other this year was being able to sleep at the new address. The only bittersweet moment occurred on Dec. 2oth when Paulie, one of our 3 cats, decided to bolt in transit and has not reappeared. He's extremely shy and kinda neurotic, so he may be gone for good.

The priority task ahead of us is sorting through all the non-essentials at the "old" house into 3 categories: garage sale items, giveaways, and trash. Everyone knows the routine and the stress involved, especially if you have a pack-rat mentality and limited storage space. Then comes the cleaning and repairs needed and finally the posting of the FOR SALE sign in the front yard. Having 2 mortgages for over a year has been a real killer.
I am anticipating a March activation date, just in time to be able to locate the birds I'll hear while putting in another butterfly garden. The new house desperately needs a yard makeover!